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Research

1. Dementia Carers Unprepared and Distressed by End-of-Life Decisions

   29 November 2018

   New international research from Advance Care Planning Australia reveals that dementia carers need more support and guidance to navigate end-of-life care for their loved one. Recently published by internationally renowned journal, Palliative Medicine, the study identifies the emotional pressures that arise when people with dementia and their carers confront tough decisions and difficult conversations about […]

2. 

   Research, Data and Articles

   29 November 2018

   Looking for some data on Palliative Care? The Palliative Care Outcomes Collaboration is a national palliative care project funded by the Australian Government Department of Health that collects data across Australia related to palliative care (which was presented at our last CEO Roundtable).  Visit their website to subscribe to notifications on new reports and resources.   […]

3. The ‘safe death’: An ethnographic study exploring the perspectives of rural palliative care patients and family caregivers

   29 November 2018

   Rainsford S, Phillips CB, Glasgow NJ, MacLeod RD, Wiles RB. Palliative Medicine Sept 2018; 1-9. Epub ahead of print. DOI: 10.1177/0269216318800613 journals.sagepub.com/home/pmj Achieving one’s preferred place of death is often considered, within palliative care, as a proxy for a ‘good death’. In rural settings, relationships between place and self are often stronger than for urban […]

4. Providing palliative care at the end of life: should health professionals fear regulation?

   29 November 2018

   End of Life Law in Australia have recently published an article exploring the regulatory framework governing this area, the extent to which health professionals actions have been scrutinised, and the consequences.

5. Research:  General practice palliative care: patient and carer expectations, advance care plans and place of death – a systematic review

   27 August 2018

   This paper, the second in a series of five, explores patient and carer expectations of the role of GPs and GPNs at end of life, their contribution to advance care planning and if primary care involvement allows people to die in the place of preference.  More than 6,200 journal articles were reviewed as part of […]