Paediatric Palliative Care Discussion Paper

The Paediatric Palliative Care National Action Plan project aims to address the needs of parents and carers seeking assistance to care for a child with high medical needs and life limiting conditions, as well as support health professionals to respond to the specialist needs of children with life limiting conditions. Palliative Care Australia is working with Paediatric Palliative Care Australia and New Zealand  to deliver the project. The objectives are:

• To increase knowledge of where the gaps are in adequate paediatric palliative care services and where services are needed
• To improve support and information resources for parents and children with a life limiting condition, workforce in hospitals, high care and palliative care providers, and
• To enhance practical assistance to children with high medical needs and life limiting conditions by coordinating a national approach.

Discussion Paper

The Paediatric Palliative Care National Action Plan project has released a discussion paper and is seeking input before 30th August.  They want to hear from:

• children, young people, family members or carers who have experienced or are experiencing paediatric palliative care
• paediatric palliative care health professionals
• professionals from health services, hospices, rural and remote services, not-for-profit organisations or any health professionals with an interest in paediatric palliative care.

Feedback on the Paediatric Palliative Care Discussion Paper can be provided through the online discussion paper questionnaire. Participation is voluntary, and you can withdraw from the consultation at any time. For more information on the project, or to provide feedback on the discussion paper, go to https://palliativecare.org.au/paediatric-national-action-plan-project.